Ethics and DNA Testing: Difference between revisions

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Some who take DNA tests may also discover unexpected parental relationships, such as learning that the parent that raised them was not actually their biological parent. This is often difficult for the child involved, and can disrupt relationships. "...test takers should be prepared to handle scenarios in which they discover either new relatives or that their existing "relatives" aren't actually biologically related."<ref>Bettinger, Blaine T. ''The Family Tree Guide to DNA Testing and Genetic Genealogy'', Family Tree Books: 2016, page 38.</ref>     
Some who take DNA tests may also discover unexpected parental relationships, such as learning that the parent that raised them was not actually their biological parent. This is often difficult for the child involved, and can disrupt relationships. "...test takers should be prepared to handle scenarios in which they discover either new relatives or that their existing "relatives" aren't actually biologically related."<ref>Bettinger, Blaine T. ''The Family Tree Guide to DNA Testing and Genetic Genealogy'', Family Tree Books: 2016, page 38.</ref>     
=== Privacy Laws ===
=== Privacy Laws ===
Privacy laws surrounding DNA vary by country. Genealogical societies in your country, specifically those interested in using DNA in research, may be able to provide you with more information. You may also wish to contact legal counsel for specific recommendations.
Generally, privacy laws surrounding DNA vary by jurisdiction (e.g. state, country). Genealogical societies in your country, specifically those interested in using DNA in research, may be able to provide you with more information. You may also wish to contact legal counsel for specific recommendations.


In the United States, DNA privacy is protected under the [https://www.eeoc.gov/statutes/genetic-information-nondiscrimination-act-2008 Genetic Information Nondiscrimination Act (GINA) of 2008]. "The Genetic Information and Nondiscrimination Act of 2008 (GINA) protects the genetic privacy of the public, including research participants. The passage of GINA makes it illegal for health insurers or employers from requesting or requiring genetic information of an individual or of family members (and further prohibits the discriminatory use of such information)."<ref>National Human Genome Research Institute. "Privacy in Genomics", https://www.genome.gov/about-genomics/policy-issues/Privacy#:~:text=Genetic%20Information%20Nondiscrimination%20Act%20(GINA,the%20public%2C%20including%20research%20participants. accessed 13 August 2020.</ref>
In the United States, DNA privacy is addressed under the [https://www.eeoc.gov/statutes/genetic-information-nondiscrimination-act-2008 Genetic Information Nondiscrimination Act (GINA) of 2008] and some local laws. In large, the "Genetic Information and Nondiscrimination Act of 2008 (GINA) protects the genetic privacy of the public, including research participants. The passage of GINA makes it illegal for health insurers or employers from requesting or requiring genetic information of an individual or of family members (and further prohibits the discriminatory use of such information)."<ref>National Human Genome Research Institute. "Privacy in Genomics", https://www.genome.gov/about-genomics/policy-issues/Privacy#:~:text=Genetic%20Information%20Nondiscrimination%20Act%20(GINA,the%20public%2C%20including%20research%20participants. accessed 13 August 2020.</ref>


==Good Practices==
==Good Practices==
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