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In the United States, DNA privacy is protected under the Genetic Information Nondiscrimination Act (GINA) of 2008. "The Genetic Information and Nondiscrimination Act of 2008 (GINA) protects the genetic privacy of the public, including research participants. The passage of GINA makes it illegal for health insurers or employers from requesting or requiring genetic information of an individual or of family members (and further prohibits the discriminatory use of such information)."<ref>National Human Genome Research Institute. "Privacy in Genomics", https://www.genome.gov/about-genomics/policy-issues/Privacy#:~:text=Genetic%20Information%20Nondiscrimination%20Act%20(GINA,the%20public%2C%20including%20research%20participants. accessed 13 August 2020.</ref> | In the United States, DNA privacy is protected under the Genetic Information Nondiscrimination Act (GINA) of 2008. "The Genetic Information and Nondiscrimination Act of 2008 (GINA) protects the genetic privacy of the public, including research participants. The passage of GINA makes it illegal for health insurers or employers from requesting or requiring genetic information of an individual or of family members (and further prohibits the discriminatory use of such information)."<ref>National Human Genome Research Institute. "Privacy in Genomics", https://www.genome.gov/about-genomics/policy-issues/Privacy#:~:text=Genetic%20Information%20Nondiscrimination%20Act%20(GINA,the%20public%2C%20including%20research%20participants. accessed 13 August 2020.</ref> | ||
==Good Practices== | ==Good Practices== | ||
===Respect Others' Privacy=== | |||
As you send messages to your DNA matches, remember to respect their wishes if they express that they would not like to be contacted. People may take DNA tests for different reasons, and some may have no interest or wish to correspond with DNA matches. Do not push or pester for responses from matches if they prefer to keep a distance. | |||
DNA tests can also reveal occasional "skeletons in the closet" for some testees. For example, one may discover that the father who raised them is not the biological father of their sibling, indicating their sibling has an unknown biological father. These kinds of new information that can arise through DNA tests are intricate, and can be complicated to navigate. A good practice, as outlined by the National Genealogical Society, "...respect the restrictions on sharing information that arise from the rights of another... as a living private person... [and] require evidence of consent before assuming that living people are agreeable to further sharing of information about themselves."<ref>National Genealogical Society. "Guidelines for Sharing Information with Other." https://www.ngsgenealogy.org/wp-content/uploads/NGS-Guidelines/Guidelines_SharingInfo2016-FINAL-30Sep2018.pdf, accesed 25 August 2020.</ref> | |||
==References== | ==References== | ||